New articles

Mory's Life

First time joining medical conference! ~LPA 2023 National Conference~

こんにちは!軟骨無形成症を持つ息子・モーリーの母、えりかです。アメリカで3人の子育てをしています。2022年、息子・モーリーが誕生しました。誕生後すぐ骨の疾患である難病・軟骨無形成症と診断されました。診断後、小児科医からは病気や合併症の説明...
Mory's Life

Achondroplasia & First Carseat ~Please check when your baby diagnosed~

Hello! I'm Erika, mother of Morrie, my son who has achondroplasia. I'm raising three children in America. During pregnancy or postpartum, if your baby might have achondroplasia or has received a confirmed diagnosis, you must feel a lot of anxiety, right? If you receive a diagnosis, one thing I definitely want you to check is chi...
Mental Care

How to Handle Your Child’s Blunt Questions ~First Step Toward a World Where Everyone is Unique and Special~

Hello! I'm Erika, mother of Morrie, my son who has achondroplasia. I'm raising three children in America. If you have children, have you ever been confused, embarrassed, or felt sorry about their sudden remarks? "Why does that person have so little hair?" "That person,...".
Mory's Life

5 Tips for Voxzogo Injections ~Getting Through it Together as a Team!~

Hello! I'm Erika, mother of Molly, my son who has achondroplasia. I'm raising three children in America. When diagnosed with achondroplasia, the first treatment method proposed by doctors is a medicine called Voxzogo. "I want to hope that his bones will grow even a little," "complications will decrease...".