Mory's Life

First time joining medical conference! ~LPA 2023 National Conference~

こんにちは!軟骨無形成症を持つ息子・モーリーの母、えりかです。アメリカで3人の子育てをしています。2022年、息子・モーリーが誕生しました。誕生後すぐ骨の疾患である難病・軟骨無形成症と診断されました。診断後、小児科医からは病気や合併症の説明...
Mory's Life

Achondroplasia & First Carseat ~Please check when your baby diagnosed~

Hello! I'm Erika, mother of Morrie, my son who has achondroplasia. I'm raising three children in America. During pregnancy or postpartum, if your baby might have achondroplasia or has received a confirmed diagnosis, you must feel a lot of anxiety, right? If you receive a diagnosis, one thing I definitely want you to check is chi...
Mental Care

How to Handle Your Child’s Blunt Questions ~First Step Toward a World Where Everyone is Unique and Special~

Hello! I'm Erika, mother of Morrie, my son who has achondroplasia. I'm raising three children in America. If you have children, have you ever been confused, embarrassed, or felt sorry about their sudden remarks? "Why does that person have so little hair?" "That person,...".
Mory's Life

5 Tips for Voxzogo Injections ~Getting Through it Together as a Team!~

Hello! I'm Erika, mother of Molly, my son who has achondroplasia. I'm raising three children in America. When diagnosed with achondroplasia, the first treatment method proposed by doctors is a medicine called Voxzogo. "I want to hope that his bones will grow even a little," "complications will decrease...".
Mental Care

A Sister Standing Up for Her Little Brother ~Life with a Sibling with Medical Needs~

こんにちは!軟骨無形成症を持つ息子・モーリーの母、えりかです。アメリカで3人の子育てをしています。今回は医療ケア児に向けられる心無い言葉について書いていきたいと思います。家族の中に医療ケア児がいる人で医療ケア児に向けて心無い言葉を向けられて...
Mory's Life

First Children's Scissors ~Recommended for children who are not good with scissors or has disabilities~

Hello! I'm Erika, mother of Morrie, my son with achondroplasia. I'm raising three children in America. This time's theme is scissors✂ Your child started practicing with scissors but can't do it well, has a disability and weak strength so they can't open and close scissors, their hands are too small for the size...
Mory's Life

Molly's Breathing Problems and Sleep Apnea Syndrome ~Complications of Achondroplasia~

Hello! I'm Erika, mother of Molly, my son who has achondroplasia. I'm raising three children in America. Sleep apnea syndrome is one of the complications of achondroplasia. Since Molly was born, I've been really worried about his breathing problems and sleep apnea syndrome... Since he was born...
Life with Kids

Parent-Child Exchange Diary ~Bilingual Japanese Practice and Parent-Child Communication~

こんにちは!アメリカで3人の子育てをしているえりかです。私自身、アメリカと日本のハーフ。子供たちはクォーターミックス。今までも度々、バイリンガル教育の大変さについて記事にしてきました。我が家ではいろいろな方法でバイリンガル育児に取り組んでい...
Life with Kids

Nationality Choice for Japanese Mixed ~My Choice as a Japanese-American Mix~

こんにちは!アメリカで3人の子育てをしているえりかです。自分自身がハーフやミックスの方、お子さんがハーフやミックスの方は1度は国籍のことについて調べたことがあるのではないかと思います。複数の国籍を持った人は国籍を選択しなくてはいけないと聞い...
Treatment and Medical

Understanding Sleep Apnea in Children with Achondroplasia

こんにちは。軟骨無形成症を持つ息子・モーリーの母、えりかです。アメリカで3人の子育てをしています。今日はモーリーの持つ軟骨無形成症の合併症の一つ、睡眠時無呼吸症候群についてお話していきたいと思います。モーリーも呼吸問題、特に睡眠時無呼吸症候...