Mory's Life First time joining medical conference! ~LPA 2023 National Conference~
こんにちは！軟骨無形成症を持つ息子・モーリーの母、えりかです。アメリカで3人の子育てをしています。2022年、息子・モーリーが誕生しました。誕生後すぐ骨の疾患である難病・軟骨無形成症と診断されました。診断後、小児科医からは病気や合併症の説明...
Mory's Life
Mory's Life 
Mory's Life Achondroplasia & First Carseat ~Please check when your baby diagnosed~
Hello! I'm Erika, mother of Morrie, my son who has achondroplasia. I'm raising three children in America. During pregnancy or postpartum, if your baby might have achondroplasia or has received a confirmed diagnosis, you must feel a lot of anxiety, right? If you receive a diagnosis, one thing I definitely want you to check is chi...
Mory's Life 5 Tips for Voxzogo Injections ~Getting Through it Together as a Team!~
Hello! I'm Erika, mother of Molly, my son who has achondroplasia. I'm raising three children in America. When diagnosed with achondroplasia, the first treatment method proposed by doctors is a medicine called Voxzogo. "I want to hope that his bones will grow even a little," "complications will decrease...".
Mory's Life First Children's Scissors ~Recommended for children who are not good with scissors or has disabilities~
Hello! I'm Erika, mother of Morrie, my son with achondroplasia. I'm raising three children in America. This time's theme is scissors✂ Your child started practicing with scissors but can't do it well, has a disability and weak strength so they can't open and close scissors, their hands are too small for the size...
Mory's Life Molly's Breathing Problems and Sleep Apnea Syndrome ~Complications of Achondroplasia~
Hello! I'm Erika, mother of Molly, my son who has achondroplasia. I'm raising three children in America. Sleep apnea syndrome is one of the complications of achondroplasia. Since Molly was born, I've been really worried about his breathing problems and sleep apnea syndrome... Since he was born...
Mory's Life Dancer DAIKI, who has achondroplasia ~Seeing his incredibly cool big back~
Hello! I'm Erika, mother of Morrie, my son with achondroplasia. I'm raising three children in America. Do you all know DAIKI (Daiki Nishimura)? In the 2024 historical drama "Hikaru Kimi e" (To the Luminous You), he plays Suma, a retainer of Abe no Seimei, who is portrayed by Yusuke Santamaria...
Mory's Life 子供の熱性けいれん ～我が家の経験談と熱性けいれんの対応方法～
こんにちは！軟骨無形成症の息子・モーリーの母、えりかです。アメリカで３人の子育てをしています。皆さんはお子さんが熱性けいれんを起こしたことはありますか？突然起こったことにパニックになったことはありませんか？私は長女が熱性けいれんを３度起こし...
Mory's Life CAMP ELLELLBEE 2025 Part 2
I participated in a family camp for children with skeletal disorders. This article is a continuation of "Camp Ellellbee 2025 Part 1". If you haven't read it yet, I'd be happy if you could read it from here. Camp Ellellbee was held for the first time this time, and it was a ki...
Mory's Life CAMP ELLELLBEE 2025 Part 1
骨系統疾患の子のための家族キャンプに参加してきました。Camp Ellellbeeは今年、初めて開催されたキャンプでNew Hampshire, Texas, California, New Jersey, Georgia, Florida...
Mory's Life モーリーの診断～退院まで
こんにちは。軟骨無形成症を持つ息子・モーリーの母、えりかです。アメリカで3人の子育てをしています。こちらは下記、『モーリーの誕生まで』の続きです。今回はモーリーが誕生した後、『軟骨無形成症』の疑いから診断、退院までを綴っていきたいと思います...